Tuesday, 13 November 2007

Thursday 1st November 2007


Bugger. Shit. Wank. Arse. Jesus titty-fucking Christ. PET Scan results were confusing. Apparently several areas had appeared to have taken up the sugar, several areas that weren't affected in the first place, including the colon and the pelvis indicating Diveticular disease which only occurs in the elderly and so doesn't make any sense. The experts were unable to get onto the machine to view the images (as the machine is at a different hospital) so they're sending a CD-ROM over to review at tonight's Lymphoma meeting. Dr A will then phone me tomo with the consensus and the plan ahead.

Dr A explained that the uptake in several areas could be due to 'Brown Fat' distribution which is perfectly normal in a young person. However, there is trace uptake in the node they thought might be scar issue so it oes appear to be active disease. The options are a short course of radiotherapy (5 minutes a day for 2 weeks), although because of where the node is (near the lungs and heart) and radiotherapy having its own set of problems, the better option might be ESHAP chemo. Here they admit me to hospital for 6 days. They put in a double lumen line, remove my stem cells, continuously pump in the chemo drugs, and then give me back the stem cells at the end. Either way I'm fucked off quite frankly, but just have to go with the flow. Am getting used to waiting around for disappointment.

On the positive side I'm off to London tonight to stay with Rebecca for a few days. Am seeing KT Tunstall in concert today, going to V and A with Mum tomo and seeing Lorna and Mark in eve, then Shaolin Monks show for Dad's birthday on Sat eve followed by drinks in Covent Garden for Eli D's birthday. Woop, woop!

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