I have a scan date! Friday! Mum ended up phoning and complaining that she didn't think the attitude I'd received when I phoned was acceptable and spoke to my consultant's secretary who helped instantly. Apparently it's holiday time and so they're taking emergency scans but other people have to wait. The list is miles long. The NHS is in such a shambles cos it's run by middle aged women faffing about with bits of flip-chart paper. I've only got my scan due to complaining. It shouldn't be like that.
Anyway...am quite nervous about it. Half-way scan and waiting for results of that was bad enough but at least just thought would be on Chemo for bit longer if it wasn't working. It seems like a much bigger thing this time though. Bit too big really...
Friday, 17 August 2007
Wednesday 8th August 2007
Well I had my last (touch wood) Chemo session on 27th July. They removed my PICC line without any trouble/pain/vomiting/fainting and all that's left is a little scar on my arm.
I've got the line still, in a little specimen tube. It's very odd not having it in my arm. I still keep hesitating when I put tops/jumpers on and showering with two arms is weird to get used to. Much preferable though and no-one stares anymore, which is great. Also means that when my blood counts rise, in a few weeks, I'll be able to go swimming so I have joined a gym and bought a new swimming costume in preparation. I literally CANNOT WAIT! I haven't been able to swim for so long...probably about 2 years now because even before I had the PICC line my skin was always too infected/itchy. Splish-splash, splish-splash.
This week is also the first week in 7 months that I have not had to return home for a hospital appointment or inject myself with GCSF. They're refurbishing G1 at the mo meaning that to get to the Haemo Day Unit you have to enter via the Senior Assessment Ward - possibly the most depressing and grim ward in the hospital. V v relieved I don't have to go back.
Am still awaiting a date for my CT scan. Rang up yesterday as was expecting scan sometime next week so was concerned hadn't heard anything. However was told reason I've not heard is there are no slots available at mo. Asked if they knew how long wait might be. Told they really couldn't say. Wonderful. I'm stuck in limbo now. Will have to wait for clinic date after scan to get results so f*ck knows when I'll find out if I'm clear or need radiotherapy. If I think about it too much I may go do-lally-lally-do-lally.
On the plus side I'm not vomiting all over the place and my hair's growing back...in my original colour. No ginger afro. Phew!!
It's been such a weird time. No-one should have to suffer from this disease. I know there are worse things to live with but this has been hard enough. I wouldn't wish this on my worst enemy...
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